IAMRARE

IAMRARE is a rare disease research platform powered by the National Organization for Rare Disorders (NORD). It facilitates patient-powered natural history studies by connecting study sponsors with engaged patients and caregivers through secure digital registries. The platform aims to improve health outcomes and accelerate treatment development by streamlining data collection and fostering meaningful relationships between researchers and the rare disease community.

LLM mention score

Normalized 0–100 · last 8 weeks

DataForSEO API

Get LLM mention data of any company via DataForSEO API

Get access to the structured data on keyword, brand, and website mentions in LLMs, including metrics like AI search volume, impressions, and mentions count.

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How to get LLM mention data →

// Fetch IAMRARE mentions
POST v3/ai_optimization/llm_mentions/search/live
[
    {
        "target": [
            {
                "keyword": "IAMRARE",
                "search_scope": ["any"]
            }
        ],
        "platform": "chat_gpt",
        "order_by" : ["ai_search_volume,desc"]
    }
]